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Educational Resource: New Horizons in the Management of ADA-SCID

New Horizons in the Management of ADA-SCID is a free educational resource for healthcare professionals managing patients with this rare disease. The resource features:

  • Webcasts on the diagnosis and management (including gene therapy) of ADA-SCID

  • Video interviews with clinicians, nurses, as well as a parent about her child’s journey from diagnosis to treatment

  • Case studies on clinical presentation and newborn screening

  • Specialist directory: map with locations of specialists around the world

  • Summaries of the latest published articles about the disease

Resource Editorial Board · Dr Robbert Bredius, Leiden University Medical Centre, The Netherlands. · Dr Fabio Candotti, Lausanne University Hospital, Lausanne, Switzerland · Dr Andrew Gennery, Newcastle University and Great North Children’s Hospital, Newcastle upon Tyne, UK


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